SuperHands Kids - Kids with disabilities can be active, successful, healthy!
Special needs education for children
Shriners hospital
Home        Kids        Heroes        Resources     Scholarships        More Links        Contact



What this website is all about!
HI Steve

I’m Tash (from Cleveland)’s Mum and I’ve been meaning to keep in touch for such a long time. How is Haley getting along, she looks so grown up now!

We’re moving to Hong Kong in the next couple of weeks. We’ll be living there for the next couple of years, then we should be back to the Midwest after that. I wanted to let you know my email will be changing to paulasivanandan@mac.com .

Over the last year Tash has started to become interested in a prosthetic for her left hand, and her surgeon here put us in touch with a Dr Pilet, who travels to the US from France a few times a year to make custom made prosthesis. Well, she decided she wanted to give it a try, and it’s been quite a marathon, with three visits to Chicago for three or four long days each time. It’s just finished and we’re waiting for the nails to be fixed on in Paris and fingers crossed it will arrive before we leave for Hong Kong. Tash is quite delighted with it, and can make her thumb touch each of the fingers, so she hasn’t lost any function when she wears it. It just pops off, so no painful surgeries or anything. I’ll let you know how she gets on with it – and how much she actually wears it, too.

The best part of the whole experience, I think, was meeting the most amazing people who had overcome losing their limbs. And they were so kind to Tash, I think it helped her to make a connection to these great women, who were coping with their lives, accepting the changes they had had to make and not letting other peoples’ reactions bother them, too much. When it was all finished and it was time to go home, Tash was sad to leave all the friends she has made.

Anyway, thanks again for all your work hosting Superhands. I hope you know how much it’s helped so many families (I’ve had emails from quite a number of Mums), and how grateful we are to have found someone to share with.

Kind regards

Paula


Hi steve!

My name is Sunshine Rose and I am on you site as being a Super Hands Hero. I've always been kind of embarrassed about it, but my friend Toni Jensen made me send you my story when she sent hers about her son John-Prince.

Well just this morning I got an e-mail from a young lady with ABS and it made me so happy that I put my story on your site. Thanks so much for this wonderful place for us to come together!

Thank you!
Sunshine Rose
Hi,

My name is Lisa and my husband is Mike. Our second child Justin was born in may of 2002.He too was born with a little hand like Haley. I came across your website when our son was about 4 months old. I was doing research about amniotic band syndrome. I forgot to bookmark your website and lost it. It took me a few weeks to find it again because I got it the first time from a link. I wanted to get in touch with you to talk about Haley, being she's older you have been through more.

When I finally found your website again ,you had just added Eric from Long Island. I was amazed, because that is where we are from. To make a long story short we ended up meeting Eric and his parents along with a few other families found along the way. We are starting a support group here in Long Island, NY. I just wanted to say thank you for starting this web site. You helped a few families find each other. That may not have happened without your website. Keep up the great work!!!!!

Sincerely,
Lisa and Mike


Hello Steve,

I felt I had to write to you to say thank you so much for putting together your web site.

My son was born on 6th March 2002 without his right hand fully developed. I searched the web to try and find other people with his condition and thus came across your site. After reading about your grand daughter Haley I just had to click on her photo to read more about her. Well….when I saw this gorgeous special little girl looking at me from the page with a hand just like my son Matthew’s it was like a huge weight lifted from my shoulders. I no longer feel so alone. Although we live in NC…a world away from you…just to see how happy and adjusted she obviously is made me feel so much better and very emotional. I have tears in my eyes as I write this letter as I am so pleased that you are spreading the word on how special these amazing and wonderful kids are. They are an inspiration to us all.

Thank you so much.

Lynda

Steve, my daughter born January 30th 2003, was also born with a hand difference. We did not know until after Lola was born that she was missing fingers and a portion of her left hand. As I'm sure you know, I am still dealing with the very strong emotions that come with the "newness" of this situation. I did find your website useful and hope that in the future, your daughter Haley will be a role model for Lola.

Thanks

Lola's Mom

Hi Steve….

Your site just gets better and better. Thanks for all the hard work.

Someone from my State with a 7 year old son contacted me yesterday via email. Her little boy apparently has the exact same thing as Matthew. It’s so good to be able to be in contact with people in the same situation, and it’s all thanks to your web site and all the hard work you put into it. Thank you.

Thank you. All the best,

Lynda

Thank you for updating my info and simply for creating the entire site. I have shown the site to a lot of my friends and they were totally blown away. Keep up the good work, and I will stay in contact!

--Tory D'Amour

Hi Steve,

Well, I just want to say thank you again for this web site. I have emailed several families and have more info than I ever thought I would.It has been such a comfort to know that there are soo many more little ones out there that have parents that feel exactly how we do. I have made a few contacts and hope to make some final plans to meet up with Justin from Long Island (so far they are the closest I have found to us here in CT). Adriane in Arizona is amazing and was so generous to send a huge envelope filled with info about "Special Blessings",a Clifford book and other photos. Anyway I could go on and on..but thank you this has been such a help to us and we would love to make a page for Shannon. Please let me know what is required. Thank you again,

Ellen
Hello Mr. Geigle!

I have not talked to you in a while so I thought I would just drop a note by. Your site is looking very nice, with many new superhands kids.

There has been some big news for me lately -- I got a prosthetic hand! I am doing something called Winter Percussion at my school, and needed a device to hold the cymbals with (since I am marching and dancing with the cymbals). I was hooked up with someone, and got an entire hand that opens and closes and looks like a real hand.

Thank you for all that you have done for me and all of the other people out there! The world needs more people like yourself.

Take care,
Tory D'Amour

If you want to be a SuperHands Kid or Hero, or know any inspiring stories that would be a benefit to this site's viewers, please send me an email. Thank You!

Home         Kids        Heroes         Resources         Scholarships     More Links         Contact

SuperHands.US