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Julia - Oceanside, New York

October 2008 – Hello, my name is Jennifer and my daughter Julia, now 4, was born without her left hand. I stumbled across this great website in hopes to show my daughter (who for the first time is really questioning why she is the only one without a little hand) that she is certainly not the only one. Thank you to everyone who has listed their child’s experiences. I am still working through reading them all but have felt some of your emotions through my own.

Julia was our first born. We had such high expectations for our 20 week sonogram, after hearing lots of stories from friends who had already gone for theirs and were amazed by the whole experience. Since my Dr didn’t do these in her office we were sent to a radiology lab to have it done. We were a bit apprehensive as they conducted the sonogram very coldly. They then brought in a Dr (not my own Dr) to hit us with the news that there was a problem with our child. They had thought it was ABS (amniotic band syndrome) and said there could be further complications and would recommend further testing to be sure. What was supposed to be a great experience left us feeling lost, heartbroken and certainly scared of what could be “wrong” with our baby.

Little did we know after keeping this information quiet, many different Drs apts. and of course the scare of what we could find on the internet we decided we would try to enjoy the remainder of the pregnancy and deal with the rest when the baby came.

In September, 2004 Julia Ann was born, a healthy 9 lbs 4 oz and as beautiful as could be. Of course, a concerned hospital team conducted further tests when she was born and had many concerns to find she a was perfectly healthy and normal baby girl. We were thrilled to say the least and relieved at the same time as we weren't sure what to anticipate.

Now to explain to everyone that she was just born missing her hand. We found this tough the first year. We refused to hide it, be ashamed of it or let it upset us but reality is it still is hard. We were referred to Shriners Children's Hospital in Philadelphia where we were told that it was not ABS syndrome that had affected the development of Julia's hand, but rather it just never grew. We have visited the doctors there for the past 4 years and they too are amazed at how well she gets along with her “little hand”. We have opportunities for surgery, a prosthetic and other options to help replace what she is missing but unless Julia shows a desire for such things we will encourage her to just be the amazing little girl she is. Nothing stops her.

As Julia developed as an infant we were also referred to have her evaluated by Early Intervention and she was eligible for physical therapy and met with the therapist for several months before they could no longer provide services as she was exceeding the expectations. As the years have gone on, she has proven us and many others wrong. She can do anything, even those things we think maybe she wont be able to do. She is not disabled nor does she have a handicap, she just has one less hand then most people. We encourage her to be herself and people will love her for that. She has had some struggles but always works them out and will continue to do so.

October 2009 - I just wanted to update since I first posted my story on Superhands last year. Julia is now 5 (going on 15 LOL) and loves kindergarten. This year proved the biggest challenge as far as the new kids and the questions that come with being 5, but we worked with the school and dealt with it and now Julia is many of the kids favorite. They are amazed that she can do all of the things they can, sometimes better. The older she gets to more we realize she has overcome her "differences" and can do anything. In one of our new photos you can see she is pedaling a train car with her hands. She actually said while doing it "look Mommy I am going faster then the other kids and I only hand one hand". She amazes us every day. The feedback and connections I have made through Superhands have been wonderful and I am happy to share our story with all that deal with similar situations.

To communicate with Julia send an email to her mother, Jennifer.

If you want to be a SuperHands Kid or Hero, or know any inspiring stories that would be a benefit to this site's viewers, please send me an email. Thank You!

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