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Campbell - Apex, North Carolina

Our son Campbell was born in March of 1992. He has 3 fingers on his left hand and a curved radius. He is missing his ulna, elbow and the bones that adjoin the fingers that are absent. He has an opposing thumb, and his index and middle fingers. We feel very fortunate that he has an opposing thumb.

Campbell was 5 years old when his little brother, Harrison was born. Campbell came to the hospital and the first thing he asked was "Mommy does he have all of his fingers?" I immediately said, "I don't know, Campbell, let's look! I haven't even looked!" (Which of course we had). We unwrapped the baby and he was so excited to see that Harrison did have 10 fingers. I said, "Well, it would be okay if he had a hand just like yours!" He agreed. We have never made Campbell's hand an issue, or a big deal, never treated him any differently or really made it a subject of conversation. We have just been "matter-of-fact" about it and answered questions, from him as well as curious people. We have had to "educate" people as he's grown up, especially curious children. We used to explain to children that everyone is born differently. People have different eye color, skin color, hair color and some people have different arms or legs, etc. But I think genuinely, people are very kind. We taught him to be very matter-of-fact about questions from other kids, whether they are rude or tactfully curious. When he was very young, he used to tell people, "Oh guess! I was just borned that way!"

Genetics: After a lot of research, we have discovered that we really do not fit into a specific genetic syndrome, although his anomaly is due to genetics. After going to genetic counseling in 1992, the geneticists offered no help and only suggested that it "may be a certain syndrome". Through our own research, we have deciphered that it only partially fits into a syndrome. Also, the anomalies have miraculously crossed 3 generations: Campbell's grandmother, mother (myself), Campbell and his cousin. His grandmother has a coloboma (a congenital malformation of the eye) in one eye; I was born with a trachael-esophageal fistula; Campbell has a left arm/hand anomaly; and his cousin has colobomas in both eyes. She will not be able to drive. Most of the time, one baby will have all of the results of the syndrome as well as kidney problems.

Campbell is 17 now and is very strong, bright and accomplished! He is the Drumline Leader for the high school band. He has taken percussion lessons and has been playing drums since 4th grade. He is a drummer for marching, concert, jazz and stage production bands. He is very smart and has a 4.3 GPA. He is planning on majoring in Psychology in college and has been taking Honors and AP courses in High School. (Advanced Placement / college-level). His graduation class is 2010. When he was in middle school, he received a county-wide award for "Spotlight on Student". This award is given to one student from each school, who is nominated and voted on by teachers for outstanding student achievement. He has had many long-time friends and good buddies growing up, has had a girlfriend, has his own car and drives very well. His little brother Harry ADORES him.

I learned how to hand-sew his long sleeves, from Campbell's Great Grandmother (Dad's Grandmother), so that the cuff stays in tact (in the tux photo). I started sewing them when he was a baby. That is the only thing I know how to sew! He likes the button shirts lately because he can roll the sleeves up naturally. (seen in a few photos).

To communicate with Campbell, you may contact his parents via email.

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